| Research Foundation |
Position on ESR
(actual quotes from email communication)
(Effective July 8, 2009) |
Comments |
Contact Info |
| Autism Society Ontario |
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| ALS Society of Canada |
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| Allergy/Asthma Information Association |
At this time AAIA does not have a policy on this matter nor are we developing one |
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Isabel Sinde
1-800-611-7011
905-265-3322
admin@aaia.ca
www.aaia.ca |
| Alzheimer Society |
The Alzheimer Society of Canada (ASC) recognizes the potential importance of stem cell research to the development of new therapeutic interventions for Alzheimer's and related diseases, and supports investigations into the use of stem cells as a form of therapy.
In general, guidelines for stem cell research developed by CIHR and covered by federal legislation will be used by ASC to define the scope of research funded by ASC. Specifically, ASC will support research on existing human embryonic stem cell and pluripotent cell lines, and derivation of new pluripotent and stem cell lines from human tissues.
At present, the creation of human embryos for research purposes and somatic cell nuclear transfer on human oocytes (human cloning) will not be supported.
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Policy adopted in June 2002 and reviewed in October 2004 (remains unchanged). |
20 Eglinton Ave. W., Ste. 1600
Toronto, ON M4R 1K8
Tel: (416)488-8772
1-800-616-8816
info@alzheimer.ca
www.alzheimer.ca |
| Asthma Society of Canada |
The Asthma Society of Canada does not conduct and are not involved in any basic science research. As such, we do not fund human embryonic stem cell research and do not have a policy on human embryonic stem cell research. |
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Christine Hampson
President & CEO
1-866-787-4050
info@asthma.ca |
| Arthritis Society of Canada |
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416-979-7228
info@arthritis.ca |
| Acoustic Neuroma Ass. of Canada |
Presently, we do not have a policy statement on human stem cell research. Your inquiry will be reviewed on the next Board of Directors call later this month |
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info@anac.ca
www.anac.ca |
| Banting Research Foundation |
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416-595-9046
banting.foundation@utoronto.ca |
| Canadian Breast Cancer Society |
The Canadian Breast Cancer Network has not developed a position on human embryonic stem cell research. |
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Jackie Manthorne
jmanthorne@cbcn.ca |
| Canadian Cancer Society |
The Canadian Cancer Society will fund research using human embryos when
- The research is deemed meritorious by an expert panel of reviewers through the grant review process managed by the Canadian Cancer Society Research Institute
- The research holds the promise of offering important information that could reduce the burden of cancer
- The research is in accordance with federal legislation governing the use of human embryonic stem cells in research, which prohibits cloning and the creation of embryos strictly for research purposes, but permits research on embryos no longer needed for reproductive purposes donated with full informed consent
Last modified on: Jan. 22, 2009
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NOTE:
On February 1 2009, the Canadian Cancer Society integrated the operations of the National Cancer Institute of Canada (NCIC), creating the Canadian
Cancer Society Research Institute. (The Terry Fox Foundation is an affiliation of the Canadian Cancer Society Research Institute).
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1 888 939-3333
info@cis.cancer.ca |
| Canadian Celiac Association |
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info@celiac.ca
1 800363 7296 |
| Canadian Ass. for the Deaf |
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1 (613) 565-2882
info@cad.ca |
| Canadian AIDS Society |
We do not have one, nor are there plans to develop one in the foreseeable future. It is an issue that does not fall under our mandate. |
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1 800 263 1638
Sarah Tremblay
(613) 230-3580 extension 110 |
| Canadian Council of the Blind |
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CCB National Office 401 - 396 Cooper St. Ottawa, ON K2P 2H7 Canada
613.567.0311 or 877-304-0968
CCB National Office
www.ccbnational.net |
| Canadian Down Syndrome Society |
The Canadian Down Syndrome Society does not have a position statement on human embryonic stem cell research |
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1 800 883 5608
Krista Flint
kflint@CDSS.ca
811 14th St. NW
Calgary AB T2N 2A4
403-270-8500 and 1-800-883-5608
www. cdss.ca |
| Canadian Diabetes Association |
The Canadian Diabetes Association is not funding any type of stem cell research and has not funded embryonic stem cell research in the past.
As the Association receives a variety of research proposals each year, should the Canadian Diabetes Association receive a research funding
request related to stem cell research, the Association will require that the proposal meet the requirements of the Canadian Institutes of
Health Research.
All researchers who apply to the Canadian Diabetes Association for funding, and are recommended for funding based on merit
and a stringent peer-reviewed process by Canadian and international scientific experts, are required to have an institutional research ethics
board approve their proposal prior to the release of Association funding. Moreover, all researchers funded by the Canadian Diabetes Association
are also governed by the guidelines of their resident institution, which include rigorous ethical and biohazard guidelines. |
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Canadian Diabetes Association
1400-522 University AVE
Toronto ON M5G 2R5
Info@diabetes.ca
1-800-BANTING (1-800-226-8464). |
| Canadian Hemochromatosis Society |
Our organization does not perform medical research and as such has never had a discussion on the use of human embryonic stem cell in research. |
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(1-877-223-4766), office@toomuchiron.ca
Robert (Bob) Rogers
Executive Director & CEO |
| Canadian Hemophilia Society |
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1 888 838-8846, tcor@hemohilia.on.ca |
| Canadians for Health Research |
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514-398-7478, info@chrcrm.org |
| Canadian Liver Foundation |
Our mandate is to provide support for research and education into the causes, diagnosis, prevention and treatment of all forms of liver disease. Research projects that we fund are not involved with the study of stem cells and the use of human embryos. If a research proposal was submitted to us that planned to study stem cells with direct application to liver disease, the proposal would be assessed by our Medical Advisory Committee. |
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Ms. Biljana (Billie) Potkonjak
National Director of Health Promotion
and Patient Services/Research Grants Administrator
416-491-3353 ext. 4932
bpotkonjak@liver.ca |
| Crohn's and Colitis Foundation of Canada |
The Foundation does not fund any embryonic stem cell research. Also, all of our research is approved by University and Teaching Hospital Ethics Review Boards. |
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416 920-5035 ext. 221
cvincent@ccfc.ca |
| Canadain Cystic Fibrosis Foundation |
See Appendix 5 |
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Eileen Hoftyzer | Scientific Information Officer
601 - 2221 Yonge Street
Toronto, Ontario M4S 2B4
Tel: 416-485-9149 ext. 230 | 1-800-378-2233 ext. 230
www.cysticfibrosis.ca |
| Canadian Hemophilia Society |
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| Canadian Liver Foundation |
Our mandate is to provide support for research and education into the causes, diagnosis, prevention and treatment of all forms of liver disease. Research projects that we fund are not involved with the study of stem cells and the use of human embryos. If a research proposal was submitted to us that planned to study stem cells with direct application to liver disease, the proposal would be assessed by our Medical Advisory Committee.
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Ms. Biljana (Billie) Potkonjak
2235 Sheppard Ave. East, Suite 1500
Toronto, ON M2J 5B5
Tel: 416-491-3353 ext. 4932
Toll-free: 1-800-563-5483
email: bpotkonjak@liver.ca |
| Canadian Lung Association |
The Canadian Lung Association does not have a position statement on embryonic stem cell research |
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1-888-566-5864, info@lung.ca
Mary McNeill
300 - 1750 Courtwood Crescent
Ottawa ON K2C 2B5
Tel: (613) 569-6411, extension 260
Email: mcneill@lung.ca
Website: www.lung.ca |
| Canadian Marfan Association |
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1-866-722-1722, info@marfan.ca |
| Canadian Mental Health Association |
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613-745-7750, info@cmha.ca |
| Canadian Society for Mucopolysaccharide & Related Diseases |
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1-800-667-1846, info@mpssociety.ca |
| Canadian Nurses Association |
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| Canadian Organization for Rare Disorders (CORD) |
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(877) 302-7273, info@raredisorders.ca |
| Canadian Palliative Care Association |
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(613) 723-1033, info@canparaplegic.org |
| Canadian Pediatric Society |
The Canadian Paediatric Society does not have a position statement on the issue of embryonic stem cell research at this time. I am unable to predict if or when we will have one available. |
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613 526 9397
Emma Wadland
Communications Coordinator
Canadian Paediatric Society
info@cps.ca |
| Canadian Porphyria Foundation |
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(204) 476-2800 |
| Canadian Public Health Association |
CPHA does not currently have a position on this topic as it is a subject area that lies outside the mandate of our Association and our members have not raised it as an issue of concern in recent surveys |
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(613) 725-3769, info@cpha.ca
Janet MacLachlan
Associate CEO
(613) 725-3769 ext.138
jmaclachlan@cpha.ca |
| Canadian Retinoblastoma Society |
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information@p4healthcare.com |
| Canadian Spinal Research Organization |
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(905) 508-4000 |
| Canadian Society for Immunology |
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tania.watts@utoronto.ca |
| Canadian Skin Cancer Foundation |
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780 423 2723, CSCF@telus.net |
Children's Health Foundation
1-888-834-2496, chf@childhealth.ca |
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1-888-834-2496, chf@childhealth.ca |
| Childhood Cancer Foundation/Candle-lighters Canada |
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1-800-363-1062, info@childhoodcancer.ca www.childhoodcancer.ca |
| Children's Hospital of Eastern Ontario Foundation |
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lhanes@cheofoundation.com
1-800-561-5638 |
| Children's Leukemia Research Association |
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516-222-1944, info@childrensleukemia.org |
| Chronic Pain Association of Canada |
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| Crohn's and Colitis Foundation of Canada |
The Foundation does not fund any embryonic stem cell research. Also, all of our research is approved by University and Teaching Hospital Ethics Review Boards. |
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Carina Vincent
600-60 St. Clair Avenue East
Toronto, Ontario,
Canada, M4T 1N5
416 920-5035 ext. 221
Email:cvincent@ccfc.ca
Web site: www.ccfc.ca |
| Down Syndrome Research Foundation |
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info@dsrf.org 604-444-3773 |
| Easter Seals |
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1-800-668-6252,
info@easterseals.org,
President and CEO
Carol Lloyd, Cathy Handscomb, ext 321, Executive Assistant, chandscomb@easterseals.org |
| Epilepsy Canada |
In past Epilepsy Canada has participated in joint funding opportunities with CIHR; in future we hope to continue to work with CIHR to support health related research for people suffering with seizure disorders. Accordingly, our policy on stem cell research is in harmony with the policies of CIHR and NSERC and are thus in harmony with the official policies of the government of Canada's funding agencies. |
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1-877-734-0873, epilepsy@epilepsy.ca |
| Gerry & Nancy Pencer Brain Trust |
We are not familiar with your organization and do not care to 'share' our policies with you without knowing more about your organization and your research project. Please mail us more information on both and we may consider your request. |
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Linda McKie
Executive Administrator
Lindamckie@aol.com |
| Heart & Stroke Foundation of Canada |
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| Hospital for Sick Children |
Supports ESR
See appendix 1 |
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Laura.Bradley@sickkidsfoundation.com 416.813.5058 |
| Huntington Society of Canada |
Supports ESR
See appendix 2 |
Policy adopted in 2005 (remains unchanged). |
(519) 749-7063, info@huntingtonsociety.ca |
| Juvenile Diabetes Research Foundation Canada |
See appendix 4 |
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Head Office
7100 Woodbine Avenue, Suite 311
Markham, Ontario
L3R 5J2
Tel: (905) 944-8700
Toll Free: 1.877.CURE.533
E-mail: general@jdrf.ca |
| Kidney Foundation of Canada |
The KFOC follows the same Guidelines with regard to Stem Cell Research as the Canadian Institutes for Health Research |
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1-800-361-7494, info@kidney.ca
Ontario Branch
700-15 Gervais Drive
Toronto, ON M3C 1Y8
Tel.: (416) 445-0373 / 1-800-387-4474;
kidney@kidney.on.ca
www.kidney.on.ca
Wim Wolfs M.Sc., MBA
Director, Research Programs
wim.wolfs@kidney.ca |
| Kiwanis Medical Foundation |
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613.233.1900 office@ottawakiwanis.org
Rita Harper, Administrative Manager
Kiwanis Club of Ottawa,
#201-1283 Algoma Road,
Ottawa, ON K1B 3W7
613-233-1900
fax 613-233-3718
ritaharper@ottawakiwanis.org |
| Leukemia & Lymphoma Society |
Support ESR
See Appendix 3 |
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(800) 955-4572
Andrea.Greif@lls.org |
| London Health Sciences Foundation |
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foundation@lhsc.on.ca, 519.685.8409 |
| Lupus Canada |
We do not currently have an official policy statement as per your request |
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Catherine Madden
Executive Director
catherine.madden@lupuscanada.org
905-513-0004 x 222
Leanne Mielczarek
National Coordinator, Campaigns & Development
leanne.mielczarek@lupuscanada.org
905-513-0004 x224 |
| The Lung Association |
The Canadian Lung Association does not have a position statement on embryonic stem cell research |
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300 - 1750 Courtwood Crescent
Ottawa ON K2C 2B5
Tel: (613) 569-6411, extension 260
Email: mcneill@lung.ca |
| March of Dimes (Ontario) |
...we do not have an official position. We co-fund a fellowship with CHIR and that is listed on our website |
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Ruth Kapelus, Public Relations Coordinator
10 Overlea Blvd., Toronto, ON
M4H 1A4
416.425.3463 x 7254
rkapelus@marchofdimes.ca |
| Medical Council of Canada |
The Medical Council of Canada does not issue health policy statements since it is an examination body that assesses physician competence. |
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Jessica Hertzog
Communications Co-ordinator
Medical Council of Canada
613-521-6012, ext. 2277
jhertzog@mcc.ca |
| Meningitis Research Foundation of Canada |
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1-800-643-1303, fund@meningitis.ca |
| Muscular Dystophy Canada |
Muscular Dystrophy Canada does not currently fund any human embryonic stem cell research.
However, as far as a know, we do not have an official policy on this matter. |
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Muscular Dystrophy Canada
2345 Yonge St, Suite 900
Toronto, Ontario M4P 2E5
416 488 0030 ext 134, 1 866 687 2538
Marla Spiegel
National Director, Research, Programs & Services
marla.spiegel@muscle.ca www.muscle.ca |
| Multiple Sclerosis Society of Canada |
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416-922-6065, info@mssociety.ca |
| Muscular Dysrophy Association of Canada |
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1-866-MUSCLE-8, info@muscle.ca |
| Myeloma Canada |
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1-888-798-5771, info@myelomacanada.ca |
| National M.E. / F.M. Action Network |
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613-829-6667 |
| National Network for Mental Health |
The National Network for Mental Health has no position on human embryonic stem cell research. |
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1-888-406-4663, program@nnmh.ca,
Constance McKnight, CAE
National Executive Director
905 682-2423
constance@cogeco.ca |
| Neurofibromatosis Canada |
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1-888-98-NEURO (63876) |
| Nightingale Research Foundation |
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info@nightgale.ca |
| Ontario Colleges of Pharmacists |
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| Ontario Federation for Cerebral Palsy |
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info@ofcp.on.
104-1630 Lawrence Avenue
Toronto, ON
M6L 1C5
Phone: (416) 244-9686 |
| Osteoporosis Society of Canada |
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1-800-463-6842 |
| Ottawa Health Research Institute mhendley@ohri.ca |
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mhendley@ohri.ca |
| Parkinson Society of Canada |
With regard to embryonic stem cell research,
- PSC supports the Assisted Human Reproduction Act (AHRA) which became law in Canada in March 2004.
- The Act and its framework ensures the consistent and regulated conduct of research, which holds promise for finding treatments or a cure for Parkinson's disease.
- PSC believes the Act balances respect for human life and potential for modern science.
- PSC acknowledges the highly sensitive and ethical issues addressed by the Act concerning embryonic stem cell research. PSC respects all points of view on this important topic
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416-227 800-565-3000,
research@parkinson.ca
Ivy Lim-Carter
Manager, National Research
& Clinical Programs
Tel. 416-227-3382 (Direct)
email: ivy.lim-carter@parkinson.ca |
| Rick Hansen Foundation |
The Rick Hansen Foundation fully supports a strict ethical and legal regulatory framework under which Canadian researchers could conduct embryonic, umbilical cord and adult stem cell research and be eligible for federal funding.
As further guidance, six years ago, the SCI Solutions Network was established with funding from the federal government (Western Economic Development) invested through the Rick Hansen Foundation. The SCI Network is a collaboration of people with spinal cord injuries, researchers and service providers committed to addressing priority needs and generating solutions for people with SCI. www.scisolutionsnetwork.ca/news/stories/feb_09/stem_cell.html
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300 - 3820 Cessna Drive,
Richmond, BC, V7B 0A2, Canada
d: 778.296.1520
www.rickhansen.com |
| Thalassemia Foundation of Canada |
Thalassemia Foundation of Canada does not have a position statement regarding embryonic stem cell research. The foundation has never funded any research that involves or includes embryonic stem cell research. Our focus is to fund research for the treatment, prevention and diagnosis of Thalassemia. The primary goal is specific projects on Thalassemia for issues under-funded or not funded by other research granting bodies in genetics, diagnosis, treatment and psycho-social studies.
The foundation has formed partnership with CIHR through the SHOPP, over the past two years, to promote and stimulate interest for research in thalassemia and to attract additional funding for thalassemia research. The amounts of funds that the foundation allocates for research is not sufficient to support large scale genetic research that would involve or include embryonic stem cell. |
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Riyad Elbard, President
Thalassemia Foundation of Canada
807-35 Empress Ave.
Toronto, ON M2N 6T3
Tel: 416 228-9993
fax: 416 733-1230
raelbard@rogers.com |
| Tourette Syndrome Foundation of Canada |
We have no official policy statement regarding stem cell research. |
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Kenneth Butland
Marketing and Communications Coordinator
905-673-2255 or 1-800-361-3120 |
| Scleroderma Society of Canada |
The consensus is "NO COMMENT." |
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Ron Gullickson
info@scleroderma.ca |
